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 Who Is a Death Doula (End‑of‑Life Worker)?

 Listener, a guide, supporter and organiser, someone who knows just how to be present without fixing anybody, who intuitively cares.

 

A Death Doula — also called an End‑of‑Life Doula, Death Worker, Death Companion, or End‑of‑Life Guide, Death Walker, is a trained, non‑medical support person who walks beside individuals and families during life when they are diagnosed with a life threatening illness, moving towards end of life, dying, death, after death care, practical matters and bringing ceremony and ritual and early grief.

A doula offers holistic support: emotional, practical, informational, spiritual, cultural, and relational.
They do not replace medical or palliative care — they complement it by tending to the human side of dying.

A doula is often described as “the steady one in the room.”

We believe in living fully until you die.  We hear your needs and wants and navigate with you how and if we can make them happen.

Why People Seek a Death Doula

People reach out for a doula when they want:

  • calm, grounded support

  • help navigating fears, choices, and unknowns

  • someone to guide the family

  • continuity across the whole journey

  • support with planning, legacy, ritual, or meaning

  • after‑death care guidance

  • a companion who is comfortable with all aspects of dying and grief

 

 
Scope of Practice (Australia)

A clear, holistic explanation of what death doulas do — and do not do.

 

​​Death doulas offer:

Emotional Support

  • Presence, reassurance, listening

  • Normalising the dying process

  • Grounding and calm

  • Vigil planning

  • Comfort measures

  • Household support

  • Organising the environment

Information & Education

  • What to expect in the dying process

  • Rights, choices, and options

  • Navigating systems and services

Advance Care Planning Support

  • Values clarification

  • Guidance with Advance Care Directives

  • Support choosing a substitute decision‑maker

  • Family Support

  • Helping loved ones understand what’s happening

  • Supporting children and partners

  • Reducing overwhelm and conflict

After‑Death Care

  • Body care guidance

  • Home vigil support

  • Funeral options and pathways

  • Early grief support

Ritual, Ceremony & Meaning‑Making

  • Blessings, vigils, farewells

  • Legacy projects

  • Cultural or spiritual practices (as guided by the client)

Advocacy

  • Helping clients express their wishes

  • Supporting communication with healthcare teams

What Death Doulas Do Not Do

Death doulas in Australia do not:

  • provide medical or clinical care

  • diagnose, treat, or manage symptoms

  • administer medication

  • make decisions for clients

  • replace palliative care, nursing, or medical teams

  • impose beliefs or cultural frameworks

 

This clarity protects clients, families, and doulas — and strengthens collaboration with health professionals.

Resource List for Death Doulas (Australia)

For practitioners, trainees, and those deepening their craft.

Professional Bodies & Networks

Practice Tools

 

Peer Support

Finding a Death Doula

Planning Tools

Support Services

For Families
  • Talking with children about death
    https://raisingchildren.net.au/guides/a-z-health-reference/death (raisingchildren.net.au in Bing)

  • Hospice & palliative care services (local listings)

  • Community health services

  • Local First Nations health organisations
    https://www.naccho.org.au​​​

Books for People Grieving a Suicide
 

For the Newly Bereaved

These books help people survive the early days — when the mind is fogged, the heart is shattered, and nothing makes sense.

1. No Time to Say Goodbye — Carla Fine

A foundational book written by a woman whose husband died by suicide. Honest, steady, and deeply validating for people who feel blindsided or alone.

2. Surviving a Suicide Loss: A Resource and Healing Guide — AFSP

Clear, gentle, and practical. Helps people understand common reactions, trauma responses, and what to expect in the first year.

3. After Suicide Loss: Coping with Your Grief — Bob Baugher & Jack Jordan

Short, accessible chapters for overwhelmed minds. Excellent for people who can only take in small pieces at a time.

For Understanding the Complex Emotions

These books help people name the tangled feelings that accompany suicide loss — guilt, anger, shame, relief, longing, love.

4. Finding Meaning: The Sixth Stage of Grief — David Kessler

Written after the death of his own son. Helps people move from “Why?” to “What now?” without forcing closure.

5. Say Goodbye — Brook Noel & Pamela Blair

A compassionate guide for sudden loss. Validates the chaos, the questions, and the emotional swings.

6. Touched by Suicide — Michael Myers & Carla Fine

A blend of personal stories and psychological insight. Helps people understand that their reactions are normal and survivable.

For Parents, Partners & Close Family Members

These books speak directly to the intimate, relational layers of suicide loss.

7. Silent Grief: Living in the Wake of Suicide — Christopher Lukas & Henry Seiden

Written by a psychotherapist whose brother died by suicide. Explores family dynamics, silence, and the long arc of healing.

8. After a Parent’s Suicide: Helping Children Heal — Margo Requarth

For adults supporting children or teens. Clear, gentle guidance on how to talk, listen, and hold space.

For Teens & Young Adults Grieving a Suicide

These are safe, steadying books for younger people.

9. You Are Not Alone: Teens Talk About Life After the Loss of a Loved One — Lynne Hughes

Real stories from teens. Helps young people feel less isolated.

10. The Memory Book — Joanna Rowland

A guided journal for children and teens. Supports expression when words are hard to find.

​​

Books to explore

These titles help someone who is ill, newly diagnosed, or beginning to turn inward.

1. The Death Doula’s Guide to Living Fully and Dying Prepared — Francesca Lynn Arnoldy

A practical, gentle workbook that helps people reflect on their life, clarify their wishes, and prepare emotionally and practically for dying. It includes prompts, legacy projects, and centering practices.

2. The Death Doula Handbook — Annie Selah

A warm, accessible guide that blends cultural wisdom, personal stories, checklists, and rituals. It helps people understand the stages of dying, navigate fear, and create meaningful closure.

3. Being Mortal — Atul Gawande

A compassionate exploration of ageing, illness, and what matters most at the end of life. Helps clients articulate values and priorities.

4. The Art of Dying Well — Katy Butler

A practical, soulful guide to navigating decline, medical systems, and the emotional terrain of dying.

Books for Grief, Loss & Emotional Processing

These support clients and their families.

5. It’s OK That You’re Not OK — Megan Devine

Validates grief as a natural, non‑fixable process. Excellent for people feeling misunderstood or pressured to “move on.”

6. Bearing the Unbearable — Joanne Cacciatore

Short, poetic reflections that help people sit with sorrow, love, and meaning.

7. The Wild Edge of Sorrow — Francis Weller

A beautiful, ritual‑centred exploration of communal grief, ancestral grief, and the healing power of being witnessed.

Books for Meaning‑Making, Legacy & Life Review

Perfect for clients wanting to reflect, integrate, or create something to leave behind.

8. The Five Invitations — Frank Ostaseski

A spiritual‑yet‑practical guide to living and dying with awareness, presence, and compassion.

9. When Breath Becomes Air — Paul Kalanithi

A memoir of a neurosurgeon facing terminal cancer — profound for individuals exploring identity, purpose, and letting go.

10. The Book of Forgiving — Desmond & Mpho Tutu

A structured, gentle pathway for clients wanting to reconcile relationships or release burdens before death.

Books for Families, Carers & L special people

These help people understand what’s happening and how to support someone dying.

11. A Beginner’s Guide to the End — BJ Miller & Shoshana Berger

Clear, compassionate, practical — from medical decisions to emotional support to after‑death care.

12. Final Gifts — Maggie Callanan & Patricia Kelley

Hospice nurses share stories about the symbolic language of the dying, helping families understand what their loved one is expressing.

Books for Spiritual, Mythic & Ritual Support

For clients who respond to story, symbol, and ceremony.

13. The Smell of Rain on Dust — Martín Prechtel

A poetic, indigenous‑rooted exploration of grief as praise and the necessity of ritual.

14. Anam Cara — John O’Donohue

A lyrical Celtic meditation on soul, companionship, and the thresholds of life and death.

Books for Children & Teens Facing Loss

For families wanting to support younger people.

15. The Invisible String — Patrice Karst

A simple, comforting metaphor for connection that continues beyond death.

16. Lifetimes — Bryan Mellonie & Robert Ingpen

A clear, gentle explanation of life cycles — excellent for children of all ages.

Books for Children About Death, Dying & Grieving
For Young Children (Ages 3–7)

1. The Invisible String — Patrice Karst

A gentle story about the unbreakable connection between people who love each other, even when they’re apart or someone has died. Perfect for separation anxiety, bedtime worries, and early grief.

2. Lifetimes — Bryan Mellonie & Robert Ingpen

A simple, clear explanation of the life cycle — for plants, animals, and people. Helps children understand death as a natural part of life.

3. The Goodbye Book — Todd Parr

Bright, simple illustrations that name feelings like sadness, anger, confusion, and loneliness. Ideal for very young children who need emotional language.

4. The Memory Tree — Britta Teckentrup

A warm story about a fox who dies and is remembered by friends. Teaches that memories can be comforting and sustaining.

For Primary‑Aged Children (Ages 6–10)

5. The Heart and the Bottle — Oliver Jeffers

A tender story about grief, emotional withdrawal, and slowly opening the heart again. Beautiful for children who have become quiet or withdrawn.

6. Ida, Always — Caron Levis & Charles Santoso

Based on two real polar bears in the Central Park Zoo. A story about illness, companionship, and saying goodbye. Honest without being frightening.

7. The Scar — Charlotte Moundlic

A raw, truthful book about a boy grieving his mother. Helps children understand that big feelings are normal and survivable.

8. The Rabbit Listened — Cori Doerrfeld

A story about how sometimes the most healing thing is simply being listened to. Great for siblings or children who don’t want to talk yet.

For Older Children & Early Teens (Ages 10–14)

9. Bridge to Terabithia — Katherine Paterson

A novel about friendship, sudden loss, and the power of imagination. Supports children facing unexpected or traumatic grief.

10. The Thing About Jellyfish — Ali Benjamin

A tender exploration of grief, guilt, and trying to make sense of a friend’s death. Ideal for thoughtful, introspective kids.

11. Michael Rosen’s Sad Book — Michael Rosen

A deeply honest reflection on sadness after the death of the author’s son. Validates complex emotions without sugar‑coating.

Books That Help Explain Illness, Dying & What Happens in a Family

12. The Tenth Good Thing About Barney — Judith Viorst

A child remembers their pet by listing ten good things. Wonderful for introducing rituals and memory‑making.

13. When Dinosaurs Die — Laurie Krasny Brown & Marc Brown

A practical, child‑friendly guide to death, funerals, feelings, and questions. Very helpful for families wanting clear explanations.

14. I Miss You: A First Look at Death — Pat Thomas

A simple, reassuring book that explains death and grief in accessible language. Good for children who ask direct questions.

Books for Children Facing a Loved One’s Illness or Decline

15. The Huge Bag of Worries — Virginia Ironside

Helps children externalise and talk about their worries. Useful when a parent or grandparent is ill.

16. Always and Forever — Alan Durant

A story about a family of animals grieving a beloved friend. Shows how routines, stories, and community help healing.

Books for Teenagers About Death, Dying & Grief

For Teens Navigating the Death of a Friend or Peer

1. The Thing About Jellyfish — Ali Benjamin

A tender, thoughtful novel about a girl trying to make sense of her friend’s sudden death. Perfect for introspective teens who process through thinking and questioning.

2. Bridge to Terabithia — Katherine Paterson

A classic story of friendship, imagination, and sudden loss. Helps teens understand grief as both devastating and transformative.

3. We Are Okay — Nina LaCour

A quiet, beautifully written novel about loneliness, grief, and finding connection again. Ideal for teens who withdraw or go silent when grieving.

For Teens Facing the Death of a Parent or Close Family Member

4. The Fault in Our Stars — John Green

A love story shaped by illness and mortality. Honest, emotional, and often comforting for teens facing anticipatory grief.

5. A Monster Calls — Patrick Ness

A powerful story about a boy whose mother is dying, visited by a truth‑telling monster. Helps teens name anger, fear, and the complexity of love.

6. The Last Time We Say Goodbye — Cynthia Hand

A sensitive exploration of grief after a sibling’s death. Supports teens dealing with guilt, silence, or “what if” thinking.

For Teens Who Need Emotional Language & Validation

7. Turtles All the Way Down — John Green

Not directly about death, but deeply about anxiety, spiralling thoughts, and emotional overwhelm. Useful for teens whose grief shows up as anxiety.

8. The Poet X — Elizabeth Acevedo

A novel‑in‑verse about identity, voice, and surviving emotional pain. Great for creative teens who express themselves through writing.

9. The Perks of Being a Wallflower — Stephen Chbosky

A raw, honest look at trauma, friendship, and healing. Helps teens feel less alone in complicated emotional landscapes.

For Teens Who Prefer Non‑Fiction or Memoir

10. When Breath Becomes Air — Paul Kalanithi

A profound memoir by a young doctor facing terminal cancer. Best for older teens who want meaning‑making and philosophical depth

11. Notes on Grief — Chimamanda Ngozi Adichie

A short, powerful reflection on losing a parent. Validates the intensity and unpredictability of grief.

12. You Are Not Alone — Various Authors (The Trevor Project)

Stories from young people about loss, identity, and resilience. Affirming for LGBTQ+ teens or those feeling isolated.

For Teens Who Want Hope, Connection & Meaning

13. They Both Die at the End — Adam Silvera

A speculative novel about two teens who learn they have one day left to live. Surprisingly uplifting — about connection, courage, and choosing how to live.

14. The Book Thief — Markus Zusak

A story narrated by Death itself, set in WWII. Helps teens explore mortality through story, metaphor, and beauty.

15. The Sky Is Everywhere — Jandy Nelson

A lyrical novel about grief, love, and rediscovering joy. Great for teens who feel guilty about laughing or moving forward.

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